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Stromme Syndrome Awareness

Meet Ruby! #littlestwarriorwednesday

Ruby is a 13-year old with a rare genetic condition called Stromme Syndrome, which causes vision impairment, microcephaly, intestinal issues, slowed growth and developmental delays. As far as Ruby's mom, Angie, knows, there are fewer than 50 cases of Stromme Syndrome in the world! When Ruby was a baby, doctors told Angie that Ruby would not talk, walk or do much of anything at all.


Angie had faith that Ruby would do all of that and so much more. It took a little extra time, but Ruby went on to crawl, walk, talk and bless the world with her beautiful smile and radiant personality. Angie and Ruby share their story on Instagram, YouTube, and their blog to normalize differences and help break down barriers to inclusion and acceptance for all individuals with disabilities.

rare+awareness


18 comments

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  • Hi Michelle, I’d seen Ruby on Chris’ SBSK YouTube channel. Aside from being outright precious, she is smart and has an adorable personality! You and Chris, and I’m sure many others out there, are doing an amazing job bringing everyone together to teach them that no matter what makes one person different from another, we are all deserving of kindness, love and respect.
    Keep up the great work!

    Esther R Gueits
  • I am so impressed with your loving care of Ruby instead of just hiding. Ruby was given to you by God because He knew you could handle it! And though it’s probably tough, you’ve done extremely well!!!

    Regina

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