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Welcome To Holland

by Michelle Sullivan May 26, 2017

When I was pregnant with Eli we found out that he has Down syndrome and a heart defect. I read Welcome to Holland (a short story/poem for anyone w...

Posted in autism, awareness, birth diagnosis, cerebral palsy, chd, chd awareness, children's hospital, Down syndrome, heart defect, holland poem, holland story, holland tour guide, kids with special needs, nicu, picu, prenatal diagnosis, rare disease, special needs, spread awareness, welcome to holland

24 comments

Incontinentia Pigmenti Awareness

by Michelle Sullivan May 09, 2017

Incontinentia pigmenti is a rare genetic disorder with very few research available. Annebelle was born a perfectly healthy nine pound baby, when s...

Posted in alopecia, cerebral palsy, focal epilepsy, genetic disorder, global delay, global developmental delay and refractory infantile spasms, Incontinentia Pigmenti, Incontinentia Pigmenti Awareness, infantile spasms, spread awareness, triplegic cerebral palsy

9 comments