Fundraisers
October 2018 Donations - Wheelchair Costumes
Happy October!This month I’m excited to announce that we are donating to a non profit that I have admired for a very long time! @magicwheelchair#li...
Advocate Like a Mother Podcast
We are so excited to announce a new podcast coming soon!
A podcast where we share stories and resources to help parents find their voice and be th...
Stromme Syndrome Awareness
Meet Ruby! #littlestwarriorwednesday
Ruby is a 13-year old with a rare genetic condition called Stromme Syndrome, which causes vision impairment, ...
What To Expect at a Sleep Study
At Eli's 2 year checkup I asked his pediatrician if she thought he needed a sleep study, she said no, he didn't need one. Then at his 3 year checku...
Goldenhar Syndrome Awareness
Meet Ozzie! #littlestwarriorwednesday
Ozzie is our first child, but my fifth pregnancy. Thus, even though the pregnancy was clinically flawless, I...
Hydrocephalus Awareness
Meet Josiah! #littlestwarriorwednesday _Josiah was born at 26 weeks and 3 days. He developed hydrocephalus within a few weeks after his early birt...
Microcephaly Awareness
Meet Claire and Lola! #littlestwarriorwednesday
We had a normal sonogram with Claire when I was 19 weeks pregnant. Everything was right on track, a...
September 2018 Donations
Happy September! This month we are donating to an organization that is near and dear to my heart. I traveled to India almost 2 years ago to visit ...
ASD Awareness
Meet Theo!
#littlestwarriorwednesday
Theo is almost 3 years old. Theo has autism, global developmental delays, and sensory processing disorder....
Wiedemann Steiner Syndrome Awareness
Meet Charlee!#littlestwarriorwednesday where we #spreadawareness
Charlee was born full term with a full head of black hair. Everything was text bo...
Lymphatic Malformation Awareness
Meet Gavin!
#littlestwarriorwednesday where we #spreadawareness
Gavin has Lymphatic Malformation of the face/neck area. It’s basically formation ...
Forest Home 2018
We are back home after an amazing week at Forest Home! Family camp was so fun - All 3 meals prepared for us (and they take food allergies and spe...