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Williams Syndrome Awareness

by Michelle Sullivan

Williams Syndrome Awareness

Sweet Dahlia was born full term, but only 3 lbs and 4 oz, despite full medical care the entire pregnancy.  She had some heart problems, really bad...
Posted in williams syndrome

Meet A&E Born This Way's Newest Cast Member: Rocco

by Michelle Sullivan

Meet A&E Born This Way's Newest Cast Member: Rocco

  The Emmy award winning show, Born This Way, has a new cast member - 3 year old Rocco! Eli and Rocco have known each other since they were one an...
Posted in A&E Born This Way, Born This Way, Down Syndrome

Syndromic Craniosynostosis Awareness

by Michelle Sullivan

Syndromic Craniosynostosis Awareness

Avery was born with syndromic craniosynostosis. There are over 200+ known craniosynostosis syndromes that can be confirmed through genetic tes...

May 2017 Donation: The Confetti Foundation

by Michelle Sullivan

May 2017 Donation: The Confetti Foundation

Happy May! This month we'll be donating 10% of sales to The Confetti Foundation // The Confetti Foundation is a non profit that supplies birthday ...
Posted in children hospital, hospital birthday party, kids with special needs, picu, special needs

Lissencephaly Awareness

by Michelle Sullivan

Lissencephaly Awareness

Hi everyone! Meet Harper. She's 2.5 years old and continues to prove her doctors wrong most days despite the odds. Harper was diagnosed with...
Posted in Lissencephaly, Lissencephaly awareness, special needs, special needs kids, spread awareness

Harlequin Ichthyosis Awareness

by Michelle Sullivan

Harlequin Ichthyosis Awareness

Brenna was born in December 2011 and unexpectedly diagnosed with an extremely rare and severe skin disorder called Harlequin ichthyosis. Brenna ma...
Posted in A different Beautiful, A different beautiful book, Harlequin, Harlequin ichthyosis, Harlequin ichthyosis awareness, ichthyosis, kids with special needs, special needs, spread awareness

Cystic Fibrosis Awareness

by Michelle Sullivan

Cystic Fibrosis Awareness

John and I welcomed a beautiful baby girl (Madilynn Paige) July 20th, 2016. She was definitely a gift from God. Just a few short days later our he...
Posted in CF, CF foundation, Cystic Fibrosis, Cystic Fibrosis Awareness, spread awareness

Incontinentia Pigmenti Awareness

by Michelle Sullivan

Incontinentia Pigmenti Awareness

Incontinentia pigmenti is a rare genetic disorder with very few research available. Annebelle was born a perfectly healthy nine pound baby, when s...
Posted in alopecia, cerebral palsy, focal epilepsy, genetic disorder, global delay, global developmental delay and refractory infantile spasms, Incontinentia Pigmenti, Incontinentia Pigmenti Awareness, infantile spasms, spread awareness, triplegic cerebral palsy

Wiedemann-Steiner Syndrome Awareness

by Michelle Sullivan

Wiedemann-Steiner Syndrome Awareness

Emma was a scheduled cesarean section on 7/9/12 at Women & Infants in Providence at 39 weeks and 3 days following an uneventful...
Posted in spread awareness, Wiedemann Steiner, Wiedemann-Steiner syndrome, WS syndrome

Trisomy 22 Awareness

by Michelle Sullivan

Trisomy 22 Awareness

Meet Chloe. She's almost three years old, though many thought she would never make it to birth. At a routine ultrasound at twenty weeks we l...
Posted in Glenn heart surgery, mosaic syndrome, MT22, spread awareness, trisomy, trisomy 22, trisomy awareness

The Littlest Warrior Story

by Michelle Sullivan

The Littlest Warrior Story

Littlest Warrior Apparel was inspired by my son Eli who is my biggest hero. We found out when I was 20 weeks pregnant that Eli had a heart de...
Posted in av canal defect, down syndrome, Down syndrome awareness, heart defect, prenatal diagnosis, special needs, special needs kids, the lucky few, trisomy 21