Fundraisers

Shoes for SMO's

by Michelle Sullivan March 18, 2018

I get asked all the time which shoes are best for Eli's SMO (supra malleolar orthotic) braces. We have found Van's SK8-HI tops with a zipper in th...

Posted in SMO's

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Down Syndrome Awareness

by Michelle Sullivan February 21, 2018

Meet Jordan Grace! Our four year old started asking for a baby sister, every night she would ask God to send her a baby sister during our family ...

3 comments

In Utero Stroke Awareness

by Michelle Sullivan February 07, 2018

Lia was born full term after an uncomplicated pregnancy. Shortly after birth, Lia began having seizures. The following day an MRI revealed that Li...

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Down Syndrome Awareness

by Michelle Sullivan January 30, 2018

Meet Millie! #littlestwarriorwednesdayWe adopted our amazing little girl through the Down syndrome adoption network. She's the best part of...

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ADNP (Helsmoortel-van der AA Syndrome) Awareness

by Michelle Sullivan January 24, 2018

MEET CARTER Written by Carter's MomCarter Troy was born on September 23, 2015 at 1757. Since that very day, we knew that our Carter would ma...

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Halloween Costumes For Kids With Disabilities

by Michelle Sullivan October 04, 2017

Halloween is just around the corner and I'm blown away by the creativity of some parents! It's no secret that I love taking things that some people...

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A Guide To Your Child's First IEP

by Michelle Sullivan September 18, 2017

I know how you feel. You've got therapies and doctor appointments, not to mention all the typical things that moms of toddlers need to worry abo...

Posted in down syndrome, first IEP, IEP, IEP meeting, inclusion, kids with special needs, least restrictive environment, special needs

10 comments

Tripp Trapp Highchair

by Michelle Sullivan August 12, 2017

Eli is 3 and he is having feeding issues. His diet hasn't changed much since he was a baby - he still eats mostly puree's and drinks from a bottle....

18 comments

Forest Home Family Camp

by Michelle Sullivan August 07, 2017

We just got back from an awesome week at Forest Home Family Camp! A week filled with no cooking, unplugged, relaxing with my family is like hea...

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Heterotaxy Syndrome Awareness

by Michelle Sullivan May 31, 2017

Heterotaxy Syndrome affects 1 in 10,000 babies and can cause any of the internal organs to be misplaced, malformed, multiplied or missing. There i...

Posted in Heterotaxy Syndrome

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How Do Siblings of a Child with Down syndrome feel?

by Michelle Sullivan May 29, 2017

Do you ever wonder how siblings of kids with Down syndrome feel? Sometimes I wonder how the girls have processed everything that has happened sinc...

3 comments

Welcome To Holland

by Michelle Sullivan May 26, 2017

When I was pregnant with Eli we found out that he has Down syndrome and a heart defect. I read Welcome to Holland (a short story/poem for anyone w...

Posted in autism, awareness, birth diagnosis, cerebral palsy, chd, chd awareness, children's hospital, Down syndrome, heart defect, holland poem, holland story, holland tour guide, kids with special needs, nicu, picu, prenatal diagnosis, rare disease, special needs, spread awareness, welcome to holland

24 comments